Monthly Archives: January 2012

Returning to normal… or the new normal…

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I don’t post as frequently about what’s going on with my Dad, because really, not a lot is happening right now.  At least not that we can see…

Dad returned to his Avastin infusions last week.  They make him sort of spacy right after, but he seemed to be doing okay at the game on Sunday.  He will continue with those every two weeks.  His next MRI is on 2/17/12… this will be there first big appointment I will not be able to attend.  This makes me nervous… I wanna be there!  I want to know what that tumor is or isn’t doing!  And I will depend on my sister to text me with any news.  And I will post as I know and details become clear.

The new normal is, my dad has a brain tumor.  There’s nothing I can do to change this.  Except give thanks for the miracle of science, good friends, loving family and so much support.

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Avastin…

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Tomorrow my Dad finally returns to his Avastin treatments… This is a drug that helps prevent blood vessels from feeding the tumor and starving it which can stop it from growing  and even help it shrink. (http://www.avastin.com/patient/gbm/about/index.html)   It is given as an infusion and currently he’s scheduled to have these treatments every two weeks. 

Because of the side effects from the chemotherapy, Dad has not been able to have more than one Avastin treatment so far.  His Neurology Oncologist thought the Avastin, even only one treatment, was the biggest factor in the shrinkage of his tumor/mass.

Avastin comes with a whole host of potential side effects – especially on his cardiovascular system.  And with monitoring and proper care – including getting him out for walks and increasing his mileage, we are working to keep those at bay!

Dad’s platelets were at 62, his White blood cell count in normal range and his Red blood count still needing to grow.  Last week, I think Dad was feeling a bit disheartened as his platelets had gone down to 49… since I wasn’t sure of the cause or if it was a temporary fluctuation, I decided to withhold that information… Glad I did.

Healing with every breath (and drip) Dad!

Update from my Dad

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I just received this email from my Dad:
“Just got back my results from my a.m. Blood test & my red blood cells are now in the normal range & my playlets hit 54, which is still low but maybe high enough for the next Avastin treatment.  As we say in lotusland, more will be revealed.”
 
Sounds good to me!  His last transfusion was on 12/30/11.  This means his body’s been doing the work to replace his platelets.  Avastin is the treatment his oncologist feels made the biggest impact in his latest MRI results, and he was only able to have one treatment in that 6 week period.  So I’d love to see him back on Avastin.
 
He’s feeling stronger and he looks great!  We are so very grateful for your continued love, support and over all good thoughts and prayers!
 
Healing with every breath Dad!

More good news…

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Good news on the Dad front! His platelets are now at 36! They’ve been climbing since his all time low count of 19 and he hasn’t had a transfusion since last Friday! His White blood cell count is now in normal range and his red blood cell count is gaining ground! This means his bone marrow is recovering and starting to do its job again! The magic number for Avastin is platelets must be at least 50…

Good news on the Dad front!  His platelets are now at 36!  They’ve been climbing since his all time low count of 19 and he hasn’t had a transfusion since last Friday!  His WBC (White blood cell) count is now in the normal range and his RBC (Red blood cell) count is gaining ground!  This means his bone marrow is recoveirng and starting to do its job again!  The magic number for Avastin is his platelets must be at least 50…  Keep those good thoughts coming!

I tell you, it’s sure alot funner giving good news than scary news!

Healing with every breath Dad!